When it comes to understanding pulmonary fibrosis, asking your healthcare providers any questions you may have should always be your first choice. Unlike an unknown source on the Internet or that friend of a friend who suffers from the same condition, your healthcare providers are trained and studied for years to be able to answer your questions, especially as they relate to your situation.
According to the Pulmonary Fibrosis Foundation, here are a few questions you may want to ask:
How will PF limit what I do?
You, more than anyone, know your own body. However, that doesn’t mean your healthcare provider can’t help you establish your limits in a safe environment. How will you know if you can take an airplane somewhere or hike a mountain by yourself? You don’t want to find out when you’re already there so the advice and help of a doctor would be invaluable in many ways.
How should I proceed if I have a problem with my PF?
If you have a chronic disease, then you must always have a plan. Ask how you should proceed if you have a problem, and ask for the exact steps. Who should you call? Where should you go? What should you do when a caregiver isn’t available? Who should you call if you have any concerns at all in regards to your care? These are all important questions that your healthcare provider will be well-equipped to answer.
When should I switch my treatment?
You will need to change your treatment many times throughout your journey. Diseases evolve and change rapidly and you must change with them. When you feel like the treatment you’re on is not making much of a difference or isn’t working well, you’ll need to discuss it with your healthcare provider so you can find an alternative. On the other hand, you may also want to switch treatments even if your treatment is working as there might be better options available. The best way to keep yourself up to date on any new and improved treatments is to talk to your doctor.