Rare Disease Day takes place on the last day of February. The worldwide event has gained a lot of traction since its inception in 2008. The main objective is to ... Read more
In response to how to cope with a chronic illness, many reply with the following statement: “there is no rulebook, so we write it as we go.” The sentiment of ... Read more
In a society that appears to glorify multitasking, after-hours meetings, excessive screen time and full schedules, it’s more important than ever that everyone finds balance and practices self-care. This is ... Read more
With the exception of using supplemental oxygen, pulmonary fibrosis (PF) is an invisible disease for the most part. Like other chronic illnesses, it can be extremely difficult for patients to ... Read more
When the only “known” cure for idiopathic pulmonary fibrosis (IPF) is removing the diseased lungs and replacing them with new ones, most people would think that opting for a double ... Read more
The Pulmonary Fibrosis News forums launched a week ago! Many members have shared the PF forums with their own personal and professional networks and as a result, conversations are starting. ... Read more
For a patient with a life-threatening illness, there is nothing more difficult than asking others to help you with a task that you were once able to do independently. Having ... Read more
For those of you who have visited, registered and contributed to topics on the new Pulmonary Fibrosis News forums, thank you! As a member of this newly launched online community, ... Read more
When people refer to a “support network” that surrounds someone with a life-threatening illness, you usually think of close friends or family members. In the past, you would rarely think ... Read more
There are a plethora of benefits for patients using online social media platforms. They help members of the community connect, and share and receive information about all aspects of the ... Read more
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