Pulmonary Fibrosis Foundation Reaches Out to Caregivers

Pulmonary Fibrosis Foundation Reaches Out to Caregivers

The Pulmonary Fibrosis Foundation (PFF) has announced that it has acquired the Daughters of Pulmonary Fibrosis program to better serve the pulmonary fibrosis (PF) community, with all funds raised going to advance and advocate community and, especially, caregiver needs. The Daughters program was launched by the Coalition of Pulmonary Fibrosis (CPF), a California-baed 501c(3) nonprofit organization.

“The Pulmonary Fibrosis Foundation has been inspired by the efforts of the Daughters program since its inception. We look forward to welcoming members of the Daughters program and making an even greater impact on behalf of the PF community,” Patti Tuomey, President and CEO of the Pulmonary Fibrosis Foundation, said in a press release. “The Foundation will continue to cultivate the Daughters program as one of our signature programs, with an expanded focus on identifying and developing resources for the caregiver community.”

The Daughters of PF program was started by the CPF to raise awareness and inform the public about the disease’s impact on the lives of both patients and their families, and to raise funds. The Daughters’ work will continue as a part of PFF and its signature programs, such as the PFF Ambassador and the PFF Support Group Leader Network.

“The Coalition has long recognized the critical role of family caregivers in the pulmonary fibrosis patient journey and the Daughters program was founded in part to educate caregivers and help raise awareness about PF,” said Mishka Michon, CEO of the Coalition of Pulmonary Fibrosis. “The Pulmonary Fibrosis Foundation shares our mission and vision for the Daughters program, and will no doubt continue its legacy of helping people with pulmonary fibrosis and their family members find better ways to live with the disease.”

The Pulmonary Fibrosis Foundation collaborates with research institutions, physicians, organizations, people with PF and caregivers worldwide to serve the PF community. PFF’s next international health care conference, Summit 2017: From Bench to Bedside, is scheduled for Nov. 9–11, 2017.  Highlights from its recent Summit 2015, held can be found here 

If you would like to contribute to the Pulmonary Fibrosis Foundation or learn more about its mission, visit the Pulmonary Fibrosis Foundation website or contact PFF directly at pcc@pulmonaryfibrosis.org.

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